Wednesday, November 26, 2008

Kristy says Happy Thanksgiving!

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This is a test to see if Kristy can blog from her phone. -Rory

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Monday, October 6, 2008

Running Ryans





Last Saturday we participated in the Autism Speaks Walk Now for Autism. Thank you to everyone who sponsored us! Ryan and every other child out there affected by autism are thankful. Rory agreed to walk even though we had to set foot on the UW campus :)

Wednesday, July 23, 2008

Vacation

Yes, I am finally writing a new entry! We have been very busy this summer, and I don't necessarily mean with activities. Just day to day living around here is busy. I am just trying to find a balance between Ryan's floortime, time for the other kids, time for the baby, and time to clean and cook. Its just not easy and it won't be but its certainly worth it. I'm sorry to say my getting up extremely early isn't working! We have been sick for a while and I'm trying to get everyone lots and lots of sleep so we have been sleeping in. A couple weeks ago a mean virus attacked us and I ended up with a sinus infection, Kaylie with croup, Bella with pneumonia, and everyone else with a bad cold. Weird for summer, its usually our break. The end of last week Kaylie got chicken pox and had it while we were on vacation to Long Beach. She had two doses of the vaccine so her case was pretty mild.
We had a fun time on the beach, shopping, and at the pool at Long Beach this year.Rory and I and all our kids,my niece, my mom, my brother and sister in law, and their two kids were all there. However we had a lot drama too. My poor sister in law ended up in the emergency room after a bad fall from a horse. It was wonderful seeing everyone and meeting my nephew, Kian, for the first time.
Our next big upcoming event is Jessi's Bday party which she has been planning since last winter. Vacation Bible school is coming up too. I can't believe how fast summer is flying by.
We decided to participate in an autism research project at the University of WA (I know, I know the Huskey school) and I have been taking Bella for assessments and things. It has been a lot of fun actually, driving in to Seattle. The older kids had fun playing games with a babysitter while Bella and I were participating. The study is for younger siblings of children with autism because of their higher risk of developing it themselves. Anyway Bella got tested by watching movies, playing with me and the researchers and things like that. She did very well and scored above average over all so I thank God for that. It was a fun experience and everyone is really very nice there (even though they are Huskies!) Bella will go back at 8 mos and 12 mos. Its great for me to get all the free assessments all the way up to 2 yrs old.

Tuesday, June 24, 2008

Happy Birthday Jon and Kaylie




Happy Birthday to my now 9 year old Jon and now 5 year old Kaylie! I know everyone says this but 'they grow up so fast'! It really is true, I can't believe how fast they have gotten big. Yesterday we had a party for them with some of their best friends. I think they had a good time. Ryan was a continual source of entertainment for all. He climbed on all the kids and at one point took off his diaper when I wasn't looking and streaked through the girls room. Oh boy, sorry to those parents who do not want their children exposed to nudity at a young age! Such is life at our house though. Happy Birthday guys and no matter how big you get you will always be my babies!!

Monday, June 2, 2008

Floortime

Last week at occupational therapy our therapist, Jade, started a new intervention program called Floortime with Ryan. I had picked up a book about it recently and so I knew a bit about it. In Jade's opinion Ryan will do better on this program than he would doing ABA. I had thought it made sense when I read the book and so I was thrilled to hear that Ryan could have a chance at it. She's going to train me to do it so I can work with him at home and I may show the rest of the family as well. He needs eight 20 min. sessions a day. I will do most of them but the kids and Rory can do them as well.
The basic idea is to join him in his play, in what he's interested in, and connect with him then gradually challenge him to come into our world more when he realizes he wants to learn because he wants that shared connection. We learn better when we are emotionally connected to what we are learning and its the same for kids like Ryan. I am hopeful that this intervention works well for him even though I am struggling for time to clean, cook, take care of the other kids, etc. It really is a lot of fun, I still like to play so it works well for me! Its the getting up at 4 in the morning so I have enough time to clean the house that is tough! The other kids can be involved in the play too so it works for everyone.
Last but not least these are some pics from Memorial day weekend at my Mom and Dads and some from our house. Grandpa was working on some bikes with Jessi and Jon.






Sunday, June 1, 2008

Milestones




My little 5 month old Bella has dicovered her feet! How cute to watch her contentedly playing with her little toes. She can now add that to her list of milestones including laughing hysterically when something strikes her funny, rolling over from tummy to back (she wants nothing to do with going the other way), splashing in the bath,skooting around on her back by pushing with her legs (she can get quite far doing this!) and blowing raspberries. She is such a sweet bright baby, always looking to communicate with everyone. I can't believe she's already 5 going on 6 months old already. My little petite thing, she's still in 3 mo. clothing most of the time. I love you Bella Boo!

Tuesday, May 20, 2008

Operation Rescue Ryan

I'm reading a book about a family fighting autism and the little boy in the story is also named Ryan. I copied their operation name "operation rescue Ryan" A few days ago I checked out just about every book the library had on autism. I have been reading every chance I get and my brain hurts! I've decided not to give up on getting ABA therapy so soon. It seems so many children have been recovered using it. I have launched my own Operation Rescue Ryan to find a good ABA program and find the funding for it. So far I have found some promising funding options and have stayed up tonight until after 2am to put together a packet to apply to the Division of Developmental Disabilities, they say they may pay if Ryan qualifies. I'm also looking into social security income for disabled children and have called about DSHS (we already have a coupon but there are no guarantees for this type of intervention. Unfortunately almost no insurance will pay even though it is the top recommended treatment for autism. I found a resource online that provides you training and a plan for your child at a much lower price. They will train you and any person or therapist. I've heard you can sometimes find college students willing to work with your child for college credit. I'm going to work with Ryan as much as I can at home and his progress in school is already amazing. He is saying a small sentence just about every day now! Thank God for all he already has in the way of therapy. He starts occupational therapy on Thursday, I think he will love that. Well I ask for your prayers for funding for an ABA program for Ryan and a waiting list thats not too long. I put him on one today thats a year long (but am putting him on all the lists to see who can take him first)! I won't stop until he gets the best help possible if I have to go to the ends of the earth! Every child with autism deserves to have the best therapy options available.

Sunday, May 11, 2008

Mothers Day

Happy Mothers Day to you Mom, Rita, and Johnnie. You are all wonderful!! Rory and the kids bought me a brand new picnic basket and Rory made everyone lunch. After mass we went over to Wildwood park for a picnic. It was perfect, I had a great time and we played a great game of watch the flowers go down the stream under the bridge and over the waterfall, kind of like pooh sticks. Ryan and Daddy started the game and then all the kids, including a friend Kaylie made at the park, had a great time playing. The winner of our last flower race was Jon and I don't think he cheated this time :)
Here are some pics of our day







Monday, May 5, 2008

Autism

Today Ryan was diagnosed by Dr.Tripp as having autism. It really did confirm what I had already suspected so it really wasn't a shock but still I feel a bit overwhelmed by it, like I have to soak it in a bit before I can understand the way I feel. I am very glad he is going to have so much help and there is so much hope for him. The Dr. said that 30 years ago if you were diagnosed with autism, there was no hope for change, however now it can be completely reversible. Ryan will be getting more specialized treatment at school now. Dr. Tripp said that school is the best place for him right now. He thinks when Ryan's speech improves, his whole world is going to open up. I feel very blessed to live in a country that will provide Ryan with so much therapy in public school free of charge. I did ask about ABA therapy but right now it is just about out of reach for just about everyone. Insurance companies will not pay for it and there are not enough therapists out there to perform it. It is amazingly expensive about $30,000 a year. We are hoping for change in the future.
I didn't realize it but early intervention is actually from age 3 to 6, so Ryan is just starting on time. He is in a window of opportunity right now. I plan to look up as much as I can about how I can also work with him at home. Ryan is improving already in many areas we discussed today and is really very social in some ways. He does give good eye contact though it is sometimes infrequent. He is always wanting someone to play with him and he does have a sense of humor and a beautiful smile that draws you in when he is happy. He is having separation anxiety from me and the dr. said that is a good sign that he is forming attachments. When he was a baby he was less attatched than his siblings. Dr.Tripp says that all this sort of development will come, but later than usual. We are going to do everything possible to reverse his autism and bring him to as much success as we can. He deserves that.
We were all very tired this morning on the way to Ryan's appt. Last night around 1 am Kaylie woke up gasping for breath. She had terrible croup/asthma. I tried steam and her nebulizer but nothing worked well enough and poor Kaylie was so scared and worked up. Rory got Bella from her crib and I nursed her quickly and put her in the car seat. Kaylie, Bella and I headed out just before 2am and Rory, who was already exhausted from service calls and getting home late, stayed with the other kids. We are a bit used to this. Jon, Kaylie, and Ryan all have narrow airways and many many times get croup when they have a simple common cold. Often our only warning is a bit of a runny nose the day before. We had a fun day with Grandma and Grandpa on Sunday, the kids played outside almost all day, it was a nice warm spring day. I was just telling my mom that Kaylie hadn't used her nebulizer for a year. I spoke too soon! She is doing well now after her steroid and breathing treatments. Bella did so well at the emergency room. She sat in her carseat and watched Kaylie until she fell asleep and didn't wake up until we got home at 5am. Kaylie did well too at the hospital and was much more calmed down. As soon as we started heading back to bed Rory's alarm went off! I snuck in about an hour of sleep and then had to get ready for Ryan's appt. in Tacoma. Rory took us to lunch at McDonalds then he had to go back to work after the appt. so I drove home and thank God Ryan and Bella fell asleep and stayed asleep after being removed from the car so we all took a long afternoon nap. Well its back to the normal routine tomorrow.

Saturday, May 3, 2008

Connecting

I just want to say how wonderful it is to connect with all of you. I wasn't sure if I wanted to start a blog because I always seem to be worried about saying the wrong thing but it is great to be able to share a bit of my life with you. Thanks for all the support.
Rory got home late last night after two calls and left this morning on another one. He hasn't been home yet but hes had to go on two more. This will be good for our finances even though we miss hanging out with him. We are just having a quiet (okay sort of quiet) day at home. Jessi went to her friends play in Tacoma this morning and Jon and Kaylie are playing with their friends, going back and forth between houses. Bella has a little bit of a cold and so is napping more than usual today, poor little thing. Its her first real cold or sickness of any kind. I just have to say I am very happy to be nursing her because I just found out that almost all the major formula brands use genetically engineered ingredients. If you use formula buy organic. I will get on my soapbox sometime soon and rant and rave about nutrition and how horrible it is that 75% of processed food in America has GMO ingredients. I think I may have found a career choice. I want to go back to college to become a nutritionist. Anyway Ryan is having a pretty good day, we played playdough, colored, and watched movies today, some of his favorites.
I was also thinking today about how wonderful it is to have a baby in the house. Yes, it can be hard trying to juggle housework, cooking, and all the kids needs but it is so worth it to have this little person to take care of and get to know. I am having a hard time thinking that this will be my last baby. We are not planning to have any more because of medical reasons. I am really enjoying my little Bella right now. I love it when she "talks" to me from her crib everyday, smiles from ear to ear, and discovers new things to look at or play with. Thank heaven for little girls!

Friday, May 2, 2008

Great Day!

Ryan had a great first day at Wildwood today! His wonderful teacher sent me a 1 1/2 page note about what he did. She said he came in with a smile on his face, ready to learn. He asked for snack in two word phrases and enjoyed playing in the rice table and with the letters. He had one meltdown over not being allowed to stand on the table but there was no crying today! GREAT JOB RYAN! Thanks for your prayers everyone.
In other news Rory is on call this weekend so we have no idea how much we'll actually see him. Thanks for your hard work Daddy. Jon mailed in a picture of an original Lego creation he made in the hopes of getting it printed in Lego magazine. He is a great builder and creator. There is no way I could make the things he does! Jessi is in the process of making a My Little Pony design to send into a contest. She wants to win a trip to New York City. I hope you win Jess. My mom and dad are planning to take atrip over to visit us on Sunday. Everyone is looking forward to the visit! I'll have some more pictures shortly I'm experiencing technical difficulties with my camera! I need my husband to help me when he gets home!

Thursday, May 1, 2008

My best helpers : Jessi, Jon, Kaylie My wonderful husband: Rory




Ups and Downs

There seem to be so many ups and downs in life. Especially if you have a child that may have autism. Ryan has good days, days where I suspect he knows so much more than he can communicate, where he is so sweet to everyone and pats his baby sisters head gently saying, "Nice, nice." And there are the bad days... he is sometimes so hard to handle that I think some days that I cannot do it anymore. But then I find strength and I do it anyway. He can wriggle so hard as he flails his arms and legs around that I can barely hold him when he throws a fit or tries to run away outside, and hes only three and 32 lbs! I want so much to have a real conversation with him at times, get to know him, what he thinks about things, his opinions, but mostly I feel I do know him by his actions what he likes to play with, what makes him smile. We have an appt with Dr. Tripp on Monday (finally after months of waiting). I don't know if he will be able to diagnose Ryan right away or if we will have more tests. Right now I will take my neighbor, and mother of an autistic teenager's, advice and take one day at a time, Lord help me. And I'll remember each day how fortunate I am to have my Ry guy here to cuddle or keep me on my toes.
It turns out Ryan is switching preschools already. We wanted him closer to home and they had an opening at Wildwood elementary. He would be there today but he woke up with a bad croupy cough and runny nose so regretfully he had to miss his first day. We went to the classroom to visit and I was so thankful for the teacher he has. We recognized each other from the childfind testing Ryan went through. She is wonderful and I think Ryan will improve in her class when he is able to get adjusted to going to school. He had really been having a hard time the second week in the other school. They even had to call me at one point for ideas on how to make him feel better. How sad, my poor baby! but I have to remind myself how this is all very good for him. Any and all prayers for him are appreciated.
Isabella got a new jumper and her little feet don't quite reach the bottom yet but she likes it and its so cute to see her using her hands to play with the toys. She is amazingly fond of looking at books just like her sister Jessica used to be at her age. Now she is trying to hold them herself-so cute!
I just want to say thank you today for my wonderful helpers Jessi, Jon,and Kaylie. Where would I be without your help? You help me with Bella, Ryan, and the cleaning and cooking. Thanks so much- Mom loves you! I want to thank my wonderful husband for all your hard work for our family. You go out everyday and work long hours to keep us all going. I love you!

Sunday, April 27, 2008

Kaylie


Kaylie showing off her new earrings

Ryan


Ryan on his first day of school

Friday, April 18, 2008

Firsts

We have a lot of "firsts" going on here lately. This is my first time writing a blog of any kind actually. I'm excited to get this blog started. I really have a lot I want to share about all of us in the Pitts family.
Last Saturday we went to the daffodil parade so our youngest family member, Isabella, went to her first annual parade. She did pretty well and liked all the colors and sights but cryed everytime a marching band came through with drums. They were a bit too loud for her 3 1/2 month old ears! That morning before the parade our 4 year old,Kaylie, announced that she was going to be brave and get her ears pierced for the first time. We were all shocked since she has been seriously afraid of getting anywhere near the ear piercing chair at Claire's. She did really well until we got into the mall. At that point she told me, "Maybe Claire's is closed today." But she was brave enough to get them done even through tears. All day everyone complimented her on her beautiful June birthstone earrings. All she said to everyone is "...but it hurt." She is our girly girl drama queen, and though she likes being called girly girl she doesn't like being called a drama queen. She would prefer the title Princess.
The biggest first of all for us started on Monday when I had to send my little 3 year old off to school on the bus. Ryan just turned three in March and yet I sent him off with his diapers in his backpack on the bus. Ryan was tested with the school district and found to have a developmental delay and so he qualifies for the preschool special education program. It seems like a really wonderful program and the bus and drivers are wonderful too, its just hard to send him at such a young age crying for Mommy as they pull away from the sidewalk in front of our house. We noticed Ryan was different than our other children around 10 months old when he started walking. From the minute he could walk he was into everything and got more and more active as time went by. This hyperactivity is hard to keep up with when you have a big family to take care of! Then I noticed his language was delayed and he didn't speak in sentences even though he didn't seem to have a problem saying single words. He still speaks much in a language only he can understand. He also didn't seem to understand much of what I was saying to him and until very recently could not answer a yes or no question even though he could quote from his favorite movies such as toy story "To Infinity and Beyond" he would shout jumping from the top of the couch. Anyway its been a long road getting here and I wanted to deny there was anything wrong at first, (I had been to two different pediatricians with him who said he was probably just a late talker), but Ryan is going to be tested for Autism on May 5th. I am just wanting him to get the help he needs to live the fullest life he can. He is doing better each day at school this week and his teacher sent a note that he was in a happy mood and barely cried yesterday! I thank God for the opportunity to send him to school and for the bus which takes him there and I know he'll get used to it soon. He has a lot of support from two of his biggest siblings Jessi and Jon and from my DH and I.